Join ORDA
Choose the membership that fits you and fill in the form — our team will contact you.
Patient membership
- For people with rare diseases and their families
- Priority for connection & support requests
- Workshops, support groups and regular meetups
Working membership
- For those who want to help run ORDA and its programs
- One-time joining fee of 10 JOD
- Participation in the general assembly
- Ongoing support for our mission
Volunteer membership
- Help at events and awareness campaigns
- Translation, design and media
- Accompany and support families
Registration forms
Thank you for your interest in joining ORDA. Membership is free for patients and their families; working membership is 10 JOD a year.
For patients who are members of the Organization for Rare Disease Awareness.
A needs survey for ORDA member patients only.
Please fill in all the information and attach the medical report. Thank you for your effort.
Share your time and skills at events, in awareness work and in supporting families.
Working membership requirements
- Aged 18 or over
- Full legal capacity
- Works for ORDA’s goals and contributes to its activities
- Agrees in writing to ORDA’s statute
- A one-time joining fee of 10 JOD and an annual fee of 10 JOD
The board decides on applications; an applicant may appeal a refusal to the competent minister within 30 days.
How does it work?
- STEP 1
Choose
Patient, working or volunteer.
- STEP 2
Fill in the form
A short online form opens in a new tab.
- STEP 3
We contact you
Our team reviews the request and contacts you.
- STEP 4
Welcome
You receive invitations to events, programs and connection services.
Contact us
We welcome questions from patients, families, doctors and organizations wishing to partner or support.
Send us a message
Write your message and the ORDA team will reply.